Thursday, March 10, 2016

What is iCureCeliac?


iCureCeliac is a patient-powered research network dedicated to enhancing and accelerating research efforts to better understand and ultimately cure celiac disease. iCureCeliac allows patients to contribute medical information and their experiences living with celiac disease and gluten sensitivity to help researchers improve treatments and find a cure. Your data can shape the types of research studies to be conducted that are most beneficial to you – the patient.

https://celiac.org/icureceliac/

Why Is This Important?

Celiac disease affects an estimated 1 in 100 people worldwide. The majority (83%) of those individuals are either undiagnosed or misdiagnosed. That means only 17% of people with celiac disease are correctly diagnosed. This is alarming given that studies show the later the age of diagnosis, the greater the chance of developing another autoimmune disorder, like Type 1 diabetes, thyroid disease and multiple sclerosis (MS).
Furthermore, undiagnosed patients or those who do not maintain a strict gluten-free diet can develop serious medical conditions including heart disease, anemia, osteoporosis, infertility, epilepsy, migraines and in some cases, intestinal cancer.

Read more at https://celiac.org/icureceliac/#GX6mXsp09CGlsYJd.99